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Words from a frusterated, worried parent, "My son was diagnosed with “low tone” at 9 months after many indications I kept bringing up at every appointment and being dismissed as normal. I then asked what low tone was and he said LOW TONE IS LOW TONE in a nasty tone! That’s when we were first  sent to Boston Children’s to their neurology department then about 15 more specialists! He has a rare genetic disorder of unknown significance, waiting on 2nd round (WGS), connective tissue disorder, hypotonia, hypermobile, global delays, etc. He doesn’t walk or talk YET, he’s 4 1/2. Your posts and videos are always so helpful, thank you!"